EACS2023: 813 "Everyone seems already satisfied because people with HIV do not die from AIDS": iCOPe HIV's stakeholder survey to identify the unmet needs of ageing and older people living with HIV globally K. Murzin , M. Cascio , A. Vanderperre , J. Levin , A. Basenko Realize, Toronto, Canada, European AIDS Treatment Group, Quality of Life, Brussels, Belgium, UTOPIA_BXL, Brussels, Belgium, National AIDS Treatment Advocacy Project, New York, United States General data Abstract category: Ageing and frailty Abstract body Purpose: The International Coalition of Older People with HIV (iCOPe HIV) is a new, grassroots network of people and organizations committed to improving care, optimizing quality of life, and fostering empowerment among older people living with HIV (OPLWH). Founding members conducted a global stakeholder survey (Feb/March 2023) to document the unmet needs of OPLWH and their supporters; and identify the best ways to engage stakeholders. Method: A web-based platform and mixed methods were used. Email invitations were sent to 400+ stakeholders who had previous contact with iCOPe HIV. Results: The survey received 192 responses; 177 were included in the analysis (response rate=41%). Two thirds of respondents were in high-income settings (n=117, 66%) but responses were collected from all global regions. Most respondents (n=109, 62%) identified as persons living with HIV, with front-line service providers in community-based organizations (n=64, 36%) and researchers (n=39, 22%) being next most likely to respond. Survey results indicate that the unmet needs of OPLWH are never, rarely, or occasionally being discussed by OPLWH themselves (n=90, 51%), by healthcare providers (n=102, 58%), or by decision- and policy-makers (n=137, 78%) globally. While community and clinical conversations about these needs were more likely to be happening in high income settings, decision makers across all settings were equally disengaged. Over half of respondents disagreed that the health and psychosocial needs of OPLWH were being met where they live (n=98, 56%) while only a small proportion agreed (n=29, 17%). Conclusions: The results indicate that the needs of OPLWH are not being met or prioritized anywhere, reinforcing the importance of increasing the visibility of older persons within the global HIV response, and the need to foster inclusion of people living with HIV in aging initiatives. The value of establishing a community-driven network like iCOPe HIV that will advocate for the rights of OPLWH is evident. General conditions 1. I confirm that I previewed this abstract and that all information is correct. I accept that the content of this abstract cannot be modified or corrected after the submission deadline and I am aware that it will be published exactly as submitted.: Yes 2. I confirm that the submission of the abstract constitutes my consent to publication (e.g. conference website, programmes, other promotions, etc.). : Yes 3. I herewith confirm that the contact details saved in this system are those of the corresponding author, who will be notified about the status of the abstract. The corresponding author is responsible for informing the other authors about the status of the abstract.: Yes 4. I agree that all data provided may be used (saved, stored, processed, transmitted and deleted) in compliance with the privacy policy to provide the services described.: Yes 1 2 3 4 2 1 2 3 4 73
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