Stuart Elborn
Britt Leopold
Anders Lindblad
welcome message/Organisation
Ulrica Sterky
Gunnar C. Hansson
Welcome to Gothenburg
The ECFS plays an invaluable role in inspiring and guiding progress of
CF care in Sweden, particularly through its conferences, publications
and consensus reports. Riksförbundet Cystisk Fibros, RfCF (The
Swedish Cystic Fibrosis Association) has translated the European
Standards of Care into Swedish, something very valuable when
lobbying the health authorities for financial support for the CF centers.
It is therefore an honour and a great pleasure for the Swedish Cystic
Fibrosis Association (RfCF) to be involved in hosting the 2014 ECFS
Conference in Gothenburg, Sweden. The venue, Svenska Mässan, is
recognized as one of the best large conference venues in Sweden. It is
located centrally in Gothenburg and within walking distance to the city.
The Swedish Cystic Fibrosis association is very excited by the
development of the European CF Patient Registry including many
different countries where comparisons of outcomes can be evaluated.
Sweden has a lower incidence of CF than in some other European
countries. The total number of people with CF is about 680. We have
centralized care at four different CF centres, all located in the
southern part of the country.
People with CF from remote areas in Sweden have to rely on shared
care with involvement of their local hospital and this might result in a
diminished quality of care if not carefully evaluated continuously. We
are now implementing a Swedish CF Registry and it is with excitement
we look forward to the results, especially if there are any regional
differences to be found.
Sweden is one of the few countries which has still to implement
newborn screening for CF. RfCF has this at the top of its agenda and
we hope this conference will help us to promote this important issue.
Welcome!
INVITATION TO THE 37th ECFS CONFERENCE
Dear Friends and Colleagues,
It is a great pleasure to invite you to the 37th European Cystic Fibrosis Conference
next june in Gothenburg, Sweden.
The ECFS Conference provides a forum for the discussion of the best and most
recent basic and applied science to facilitate translation of the latest knowledge
into daily clinical practice. The programme will reflect these priorities and bring
together scientific and clinical teams from around the world. A high quality
programme is planned with international leaders in the field delivering plenary
and symposia lectures.
The 37th ECFS Conference will take place at the Swedish Exhibition & Congress
Centre in Gothenburg, one of the most effective venues for conferences in all of
Scandinavia. It enjoys a unique location right in the centre of Gothenburg and in
walking distance to hotels, restaurants, and entertainment.
Gothenburg is situated by the sea on the west coast of Sweden and is Sweden‘s
second largest city as well as the fifth largest in the Nordic countries. The city
was founded in 1621 by King Gustav Adolf II and has since been on an exciting
journey from being a shipping and industrial city to a creative hub for innovation.
Gothenburg is home to many students and the atmosphere in the city has a
culture of energy and fun while promoting learning and knowledge. One of
Gothenburg‘s most popular natural attractions is the Southern Gothenburg
Archipelago, which is a set of many picturesque islands that can be easily reached
by public transportation.
We truly hope that you will join us in Gothenburg and actively participate in the
conference, which will be an excellent opportunity to discuss the important new
developments in CF research and clinical care. We are confident the conference
will invigorate all in the CF community to continue their efforts to improve quality
of life and survival for people with CF.
We look forward to welcoming you to the 37th European Cystic Fibrosis
Conference in Gothenburg.
Stuart Elborn
President, ECFS
Ulrica Sterky
Chairman
Local Liaison Committee
Gunnar C. Hansson
Conference Vice President
Anders Lindblad
Conference President
Britt Leopold
Executive Director
Swedish Cystic Fibrosis Association
PATRON OF
THE 37th EUROpEAN CYSTIC FIBROSIS CONFERENCE
Her Majesty Queen Silvia of Sweden