ECFS 2020 - Optimizing pharmaceutical care in cystic fibrosis

148 w w ww.ecfs.eu OPTIMIZING PHARMACEUTICAL CARE IN CYSTIC FIBROSIS CF MEDICINES IN CHILDREN CHAPTER 8 real challenge for manufacturers and more research in this field is required. 5 Conclusion The 1989 United Nations Convention on the Rights of the Child “recognizes the right of the child to the enjoyment of the highest attainable standard of health”. This includes the right to evidence-based treatments, as foreseen for mutation targeted therapy, and adequate and specifically targeted CFTR therapy. In the exciting era of CFTR modulators, which are reshuffling the ther- apeutic landscape and the prognosis of the disease, we indeed need to maximize efficiency of the currently used drugs and decrease safety issues of these new life- long medications. This is a challenge that we have to face, by increasing our knowl- edge of pharmaceutical care in CF children